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Antiphospholipid Syndrome awareness, education, research, and support

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At what age were you diagnosed with APS?
 
Welcome to the American APS Association Print E-mail

The American APS Association would like to thank you for visiting. Awareness and patient education  of antiphospholipid syndrome are two very important parts of the mission of the AAPSA. When you share this site and the information found here with others, you help make a difference.

Antiphospholipid Syndrome is one of the newest and fastest growing autoimmune disorders today. Unfortunately, it is also one of the least known and understood by the general public and medical community. Many APS patients struggle for years without a diagnosis wondering why they suffer with the symptoms that affect them daily. Once diagnosed, finding the information they need to help them understand their new diagnosis can be nearly impossible.

As patients, we have partnered with some of the world renown physicians that have dedicated their lives to the study and treatment of antiphospholipid syndrome and the antibodies themselves. The result is the non-profit American APS Association. Our mission is awareness, education, research and support.

Most patients had never heard of APS until their diagnosis. Education is a must. Though we have great support system in our families and friends, we all need to talk to someone who truly understands from time to time. Awareness, education, research and support.

Please visit this site regularly as we update and build to bring you the most accurate and up to date information.

Last Updated on Wednesday, 02 June 2010 21:20
 
13th International Congress on Antiphospholipid Antibodies - Patient Perspective Print E-mail

The 13th International Congress on Antiphospholipid Antibodies was held in Galveston, Texas April 13-16, 2010. Hosted by Chairperson Dr. Silvia Pierangeli, and co-chair Dr. Robin Brey,MD the congress was attended by hundreds of the physicians that dedicate their work to treating and studying antiphospholipid syndrome and the antibodies themselves.

Several representatives of the American APS Association were in attendance. We rolled up our sleeves and immediately began serving by stuffing bags and moving boxes. While it may sound tiring and far from glamorous, it was quite an honor to help those that work so hard to give us relief and search for the cure. Being a part of early registration gave us an opportunity to get to know the staff of the Continuing Education Department of the University of Texas Medical Branch. They welcomed us with open arms and immediately treated us like part of the family.

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Disclaimer

The American APS Association is volunteer run by APS patients and their supporters. Although we have a Medical Advisory Board to make sure the information is correct, the information provided by the American APS Association is meant for educational purposes only. It is not intended as medical advice. If you need specific advice about your medical condition or symptoms, please seek the assistance of your care provider.